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A week ago I had a CAT scan.

After two treatments, the Doctor wanted to check the status of the belly bully.
We wanted to know too!
We were praying and hoping for some serious shrinkage.

So we went in so I could get CAT scanned.

I know the drill now…I dutifully laid down on something that looks like an ironing board and I lowered my camouflage cargo shorts with no shame.
The first thing that the chemo seems to kill is self consciousness.
Suddenly you really don’t care who sees your Sponge Bob boxer briefs!
I have now dropped my cargo shorts and hiked up my Yoda T-shirt in front of roomfuls of strangers.
It’s liberating!
It makes me think…
I wish there had been a pleasant taking multivitamin that I could have taken as an eleven year old that would have eliminated self consciousness and selfishness from my life.
But, alas, we all have to work on our self ourselves.
I was injected with a clear liquid called “contrast”. It helps to show the difference between the good stuff and the bad stuff. The contrast enters your bloodstream and makes you feel warm all over. It also makes you feel like you wet your pants, which is delightful, especially since you are already pretty vulnerable with your pants hiked down!
Then the big machine started and I was moved back and forth into a metal tube while I practiced some yoga breathing exercises.
I heard a mechanical female voice calmly say “take a deep breath and hold it”. Then what seems like four minutes later, the robot voice says “let it out”.
That repeated seventeen times.
Then it was done and we were sent home to wait for the results by the technician with the great poker face.
Waiting for results is never fun.
Whether it’s a medical test, or a EOG (End Of Grade) test, or the results from a job interview, or a genealogy test.
Waiting for results is hard.
We want to know NOW!!
Then, inevitably, as you wait, you hear the voices…
“This is bad, otherwise you would already know.”
“It’s gotten worse.”
“You have failed.”
They gnaw at your better judgement.
You can’t listen to those voices during the waiting.
You have to kick them to the curb and listen to THE voice.
We have called the doctor’s office and even hung out in the waiting room trying to find out SOMETHING.
But, it hasn’t worked.
I’ve had to remind myself that I’m not the only patient, there are lots of people in front of me in line.
We are waiting.
Maybe the waiting is some sort of weird test too…
Get vulnerable
Don’t be selfish.
Take a breath.
Take another breath.
Don’t forget to breath.
Listen for the voice.
Follow directions.
Ignore the negative voices.
Try not to wet your pants.
Wait…

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AVAST!

Pardon me, but my pirate is showing.

The last few weeks, I’ve been stumbling around like a drunken old sea-dog.

I shout loud grunty phrases like ARGHHH, especially when I bend over to hike up my pirate pants.

I’ve often had to straighten up my eyepatch so that I have the right perspective (that’s very important).

I ate some Captain Crunch.

I’m a pirate.

And so in the true spirit of soul piracy, today  I defiantly hoist a new flag…it’s a red flag.

In the golden age of piracy, during a battle, if a ship refused to surrender when they were clearly beat, the other ship would hoist a “No Quarter” flag. It was usually a red flag and it served notice that no quarter would be given. Basically they were saying “you had your chance to go peacefully, but you didn’t. So, now you are going down. We are taking no prisoners and giving no quarter!”

Today I serve notice…

We give no quarter to the belly bully.

SAVY?

All the Feels…

This weekend I experienced every possible flavor of feeling.

I felt pain…

Once friendly body parts became strangers this weekend…

My tongue began to feel like a scratchy, ill fitting accessory, like a second hand wool sock. 

My hands became cold and clunky, and they ached. It felt like I was constantly wearing HULK hands that were lined with thumbtacks. 

I felt manly…kinda…

I lost my weird beard a while back, but I’m happy to report that I still have the thirteen scraggly chest hairs that I’ve had most of my adult life. They are hanging in there. 

I felt humbled and hopeful…

I cried warm tears of gratitude as I realized that God is using my crazy story to bring hope and joy to others. What a privilege! 

I felt sorrow…

I cried hot tears of grief as I realized that some dear young friends have suffered an unimaginable loss this weekend. I pray that they would feel unexplainable comfort. 

I felt pure joy…

I got to spend quite a bit of time with my granddaughter, the Moonpie, this weekend. She makes my heart smile, even in the middle of all the other feelings. When I watch her giggle and try new things, I feel fresh wonder. When I try to keep up with her as she stomps around the room, I feel old, yet brand new at the same time. 

I feel grace…

Raw, ridiculous grace. 

It covers and carries me through all of the feelings. 

Grace brings beauty from the ashes, 

but first things have to burn.

And sometimes, that stings.

I feel it. 

All the feels…

Therapy.

Posted: August 26, 2018 in Postcards from Cancerland., Uncategorized

Art has been my therapy for a awhile.

I’ve been drawing silly pictures for as long as I can remember.

Ever since I could hold a purple crayon in my chunky fist, I have found solace in scribbling.

The answer for bad days, bullies, and broken hearts has always been to sit down, take a breath and draw a cartoon.

But, a particularly nasty chemo drug that I can’t pronounce has made my fingers wonky and wiggly.
So, right now I can’t draw.
That’s really not cool.

I need some medicinal creativity.
I need songs, images and stories to soothe me.

Art is therapy.
And, sometimes when you can’t make your own craft you can borrow art from others.
It can still be completely therapeutic.
Sometimes, you are healed by art on loan.
Maybe it’s the music or musings of a total stranger, or even, someone who has been dead for decades.

But, sometimes you are embraced by the art of a friend.
That is such a cool and beautiful privilege.

Tonight, We took a little excursion out into the land of the living to a funky little theatre.

I got to go hear some amazing art from some friends and it washed over me like healing waters.
I was incredibly privileged to witness three friends, who I have watched grow from teenage humans with big dreams into fully functional adult artisans.
It’s so ridiculously sweet to witness friends grow into their art and find their voice.
Tonight their voices spoke to me.
It whispered hope, freedom, and fun.

I met all three of them nine years ago this month when we moved to Charlotte.

The first was Cameron “Cheesecake” Floyd, I haven’t heard Cameron for a few years and he has grown so much as an artist. He strapped on a guitar and sung some beautiful original songs. He did an incredible job. His songs were playful and profound (you can be both…at the same time!) He has fantastic stage presence.

The second friend is Ivory Layne. Once upon a time, she was the musical director of our little middle school tribe. Now, she is a phenomenal songwriter, musician, and performer. She makes art that is so completely unique that it defies labels or limits. She hit the stage with her fancy band and made the kind of music that really needs to be shared with the whole world. It is bouncy and honest. It is life giving and you can dance to it!

The third friend was Madalyn Rhyne, who is a master at management, and yes, friends, that IS an art!
She takes care of business for her sister, Ivory. Nine years ago, Madalyn was one of our awesome small group leaders. Today, she crafts moments, she orchestrates events, and she does it with a smile.

I would like to publicly thank the three of them for speaking to me tonight.

I’m so proud of Y’ALL.
I appreciate your art.
It is medicine.

Art is therapy.
If you find that you can’t make it, borrow it!

Stare at a painting by Picasso.
Listen to a Beatles album.
Read some poetry by Maya Angelou.
Notice someone who is turning mundane into masterpiece because they do it with passion.

Let it speak to you.

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Image  —  Posted: August 24, 2018 in Postcards from Cancerland., Uncategorized

Fu Manchu.

Posted: August 24, 2018 in Postcards from Cancerland.

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I wore a fake mustache to my Doctor appointment today.

I realize that normal people don’t do that.

I have absolutely no interest in being normal.
The fake ‘stache was a Fu Manchu, I looked like a deranged hipster truck driver.
On the way, I got some looks of confused respect from the construction workers in our neighborhood.
I got strange looks in the parking lot.
I think people were looking for the other members of the Village People.
Diana and I quietly walked into the office.
There was a poor innocent lady in the waiting room who just couldn’t make eye contact with me.
I walked up to the receptionist, who has become a good friend of ours. She is an awesome lady and a self proclaimed joy pimp. She acknowledged us, but she was working hard. She didn’t look up at first, but when she did, she giggled.
And then there was a loud guffaw.
She said that she had been having a bad morning and that my fake facial hair had somehow made her day.
Mission accomplished!
If I can lighten the load for someone and make them giggle, my life is really good.
There was a time when I had BIG plans, I wanted to be a BIG deal.
I wanted fame and fortune and respect.
I realize now that it’s better to make a BIG difference in small ways than to be a BIG deal.
My goals are pretty simple these days…
1. Heal.
2. Unleash some joy while I’m healing.
That’s it.
I’ve spent a lot of my life thinking I needed a position and a plan.
Now, I realize that purpose is more important than position, and it’s a whole lot simpler.
The disease that I currently fight has stopped some of my plans.
I find myself on a medical leave until December, so that I can heal.
BUT…and this is a BIG but…
The disease that I currently fight can NOT stop my purpose.
Pain can paralyze plans.
Purpose can proceed as an act of defiance against pain.
My present day purpose can be summed up in two words:
Unleash Joy.
But, here’s the crazy thing…It’s been my purpose all my life.
The lines are just a little clearer now.
Everyone has a purpose.
It’s usually simple.
It grows out of who you are and who you’ve always been.
It’s BIGGER than plans or position.
It makes you unstoppable.
Now, excuse me, I’m gonna take a selfie with a silly nose.

I find myself the grateful beneficiary of the choices of others. 

It’s been like that all my life.

My parents, teachers, heroes, and friends.

They all made choices that built me. 

and so…

I find myself the grateful beneficiary of the choices of others.

This really dawned on me the other morning…

Once upon a time in Ohio, a young man decided to become a doctor and to study Oncology.

I presently find myself the unbelievably grateful beneficiary of that decision.

I asked my Doctor about that this week, as I sat in an exam room on a bench with crinkly paper. 

I wanted to know the story behind the decision that now is part of my story.

He sat down and told me and Diana a beautiful real story of hope and a choice to be a helper.

I needed to know. 

My question was simple, How did your story become part of mine?

I’m so very thankful for his choice and for his story. 

Whether we realize it or not, we are all beneficiaries of the choices of others.

AND…

Others can be the beneficiaries of our choices.

That is the way that life is supposed to work. 

Our stories are meant to intersect and become part of a bigger story. 

We are shaped by the stories of others.

Sometimes we are saved by the stories of others. 

There are no solo stories. Even the Lone Ranger had Tonto. 

The longer we live the wider our story becomes, not because of our achievement or attributes, but because we become absorbed into the stories of others. 

Our choices help script the stories of others, and their choices script ours. 

Story also means that the loved ones who we have lost are never really lost.

The parents, teachers, heroes, and friends. 

We carry their stories. 

We continue their stories. 

I find myself the grateful beneficiary of the story of another man.

I’m so very thankful. 

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I remember the first (and only) time that I tried to use nunchucks. 

Nunchucks are a traditional martial arts weapon consisting of two sticks connected at one end by a short chain or rope. My best friend and next door neighbor had gotten some at the State Fair. Me, him and some other friends gathered in his barn to try them out. 

We were twelve year olds who had seen one Bruce Lee movie, we figured that made us experts. 

What could go wrong?

A few of the other guys went first. They unleashed some impressive moves. One guy totally dismembered a bail of hay…it was brutal. 

Then…

it…

was…

my turn. 

I enthusiastically grabbed the sticks and tried to make a celebratory manly grunt that sounded more like a basketball deflating.

It was an unparalleled exhibition of adolescent awkwardness resulting from a complete lack of coordination and training. 

It started out promising because I had paid attention to the Bruce Lee movie and I assumed the intimidating pre-fight pose. I had a scowl on my face that clearly communicated that I meant business.

Then I started moving…

That is when things went horribly wrong.

I was wildly swinging the wooden nunchucks around, I pounded myself in the face and pinged myself in the nether regions. I was very successfully beating the crap out of myself. 

I couldn’t stop because my buddies were watching.

THEN, I couldn’t stop because of the momentum of the out of control weapon in my hand. 

My gracious friends averted their eyes and acted like they didn’t notice the carnage.

FINALLY the martial madness stopped and I dropped the nunchucks.

It was a knockout. 

By the end, I had little purple bruises all over my head and body. It looked like I had been punched repeatedly in the face by small children with tiny fists. 

That was fun to explain to my Dad. 

Last night was rough, it kinda felt like I was laying in bed using nunchucks for the first time.

There were lots of random aches and pains, my arms, legs, and nether regions were taking an invisible beating. 

It shouldn’t be a surprise, I have a war going on inside of me. The life giving poison is pounding and pinging the belly bully. 

This is not an exhibition.

This is real life. 

We are dealing with the repercussions of Round two. This round is different than the last, my body is a little more tired.

I feel pretty punch drunk.

And while the battle raged last night, my throat was raw and everything tasted like I’d been sucking on a rag used to clean ashtrays at a midwestern bus stop. That was a super pleasant bonus! 

Here’s the thing I’ve learned about night fights…

Morning always comes.

You get to drop the nunchucks and walk away, probably with some weird bruises.

You walk away wiser, stronger, more aware. 

I’m waiting for the knockout…

The final knockout when the belly bully is beaten into oblivion and the bell rings. 

It’s coming!

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My Grandma introduced me to Pooh when I was a kid.
I’m forever grateful.
I loved the books, I loved the movies.
I lost myself in the story.
I wasn’t the only one.
Winnie the Pooh is one of the most beloved characters ever.
But, now many of us try to find ourselves in the story.
There are Pooh Personality Tests.
Like a warm fuzzy Myers Briggs, they help you understand yourself better by telling you which character you are.
You would think, based solely on physical appearance that I would relate to the Silly Ol’ Bear.
I AM built like Winnie and most of my shirts fit funny.
I also really like honey (or hunny).
But I’m not Pooh.
I’ve always been Tigger.
It’s not always popular to be Tigger.
Sometimes Owl and Rabbit don’t take Tigger seriously.
He is a lightweight.
He is way too enthusiastic.
He’s really annoying.
He’s a morning person.
He gets in trouble.
He sings off key.
I’ve always been Tigger.
And right now, it serves me well to be Tigger.
Because of two handy Tigger life skills…
Roaring and bouncing.
Tigger is hardly stealth.
He arrives at Pooh’s front door and announces himself with a stylized roar.
I’m here!!
I’ve never been sneaky.
I usually unintentionally announce my entrance into a room, I’m loud and sometimes I’m clumsy.
I know how to roar.
The roar says I’m still here!
And so I roar!
I also know how to bounce.
Bouncing is what Tiggers do best.
Bouncing is a skill that makes Tigger appear bigger than he actually is.
I’ve bounced to avoid things.
I’ve bounced to escape, or get out of responsibilities.
Now I find that the power of the bounce is found in what you are bouncing to and not from.
So I bounce toward…
Hope,
Healing,
Joy,
Freedom.
As I bounce away from things, situations, and hurts, they become smaller.
And so I bounce.
We all find our own way to Christopher Robin’s house.
Some bounce like me, some saunter.
As long as you find your way home, it’s all good.
Some of my best friends are Eeyore, I wouldn’t change them for a pot of honey.
I need them in my life. Without them the Hundred Acre Wood  is incomplete.
And so I roar and I bounce.
Worraworraworraworraworra!

It’s the weekend after round two and I’m feeling musical.

No, seriously!

I feel like my body is a band, making some fantastically wild rhythms.

It’s not a quiet relaxing tune.
It’s not a simple, structured song.
It’s definitely jazz.
Wild, free jazz that can take you anywhere.
Jazz…
My brain plays a syncopated song of steroid.

But, instead of a snare drum, it feels like (and sounds like) a glob of fuzzy green jello. Which, never really caught on in marching bands.

I’m not thinking super clearly.
But, that’s okay.
Because, I’m jazz.
Sometimes jazz doesn’t make sense until the song is over.
Jazz…
I had something plugged into my arm that looks like a Glade plug in. It unleashed some magical white blood cell boosters into my body. It makes my body fluttery. It’s almost like the slow rumble of a stand up bass moving me from the inside out.
Jazz…
I was on a brand new antibiotic this weekend which has played the not-so-sweet song of side effect. On an out of tune porcelain keyboard some fierce sounds have been…umm…created. Sometimes the song we are given is loud and obnoxious. It’s all a part of the raw rhythm of life.
Jazz…
Some smells can be so strong that they can become sounds. It’s like a fragrance Flugelhorn. They create mood, drawing us in with minor and major chords. I’m pretty sure that I’m smelling things that haven’t even been invented yet. Sometimes, it smells like something is on fire. Sometimes I smell fruity pebbles, or the unexplainable odor of spoiled root beer.
Jazz…
This weekend has been a crazy concerto.
I’m still dancing…
Because, I’m jazz.
And, because sometimes jazz doesn’t make sense until the song is over,
I keep pounding the BIG joy drum.