The Unicorn Stomp.

Posted: October 6, 2018 in Postcards from Cancerland.

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My granddaughter, the amazing Moonpie, walks like a unicorn.

It’s true.

Instead of just walking, she does a hop-bop-dance-trot thing.
It’s how she gets places.
She is stylishly mobile.
It’s so much fun to watch.
She moves like she really can’t wait to get where she is going!
She can’t contain herself in her pursuit of what’s next!
She walks like there is fun right around the corner.
She bounces, because after all there are sights to see.
Surely there are great wonders to behold!
I love her walk.
It’s real life magic.
It’s the unicorn stomp.
It’s not a graceful walk.
Sometimes, she wobbles and falls.
Sometimes, she turns around in mid stride. Sometimes she stops everything just to hop a bit, or dance a lot.
It’s not calculated or choreographed.
It’s a reaction to the road that she is on.
She is easily distracted and always ready to stop and say howdy to a potential new friend.
There is frequent celebration. She stops to clap for herself. She makes crazy facial expressions and laughs loud.
Discovery is just as  important as destination.
Perception determines direction.
My Granddaughter is teaching me how to walk again.
I’m wobbly and not graceful.
That’s not stopping me.
I want to do the unicorn stomp.
I want to walk with anticipation of something good right around the corner.
I want to bounce toward wonder.

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I have a long history of Hallelujah. 

Hallelujah is a beautiful, vibrant, living word.

It’s a word that you can’t limit or pin down. 

It’s a seven layer dip of thankfulness. 

It can mean glory, or huzzah, or giddy up. 

It is an otherworldly word that musically communicates the thought…

“WOW! Look what God did!”

I have a history of Hallelujah.

From the beginning minutes of my life when Doctors didn’t expect me to live more than twenty four hours, but my Creator had other plans.

Hallelujah!

To the countless times, that I’ve been on the edge of destruction and I’ve been held in the strong grip of love. 

Hallelujah! 

To the crazy times, that a BIG God has used a little man, and caused some wild dreams to come true.

Hallelujah!

To…NOW,  when I find myself walking in the middle of my latest Hallelujah. 

It’s not easy, there are challenges that I’ve never faced. There is pain. There is uncertainty.

But, I carry my history of Hallelujah and I refer to it often. 

I know that my life has been highlighted by Hallelujah. 

My story screams Glory. 

This latest fight will be my Hallelujah.

After all, I am a walking, talking Hallelujah. 

I’m proof that…

God is good.

He has a wild imagination.

He isn’t finished. 

Hallelujah!

CRASH!!!

Posted: October 2, 2018 in Postcards from Cancerland.

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I’m living in the aftermath of treatment week number four.
My senses and sensibility have come crashing down.
It has been a collision of confusion, pain, and sleepless nights. (Yup, it’s like high school all over again!)
I haven’t really been able to think straight. I’m foggy brained.
I’m very clumsy right now, I stumble around like a disoriented sloth. This morning I almost fell down and wiped out during my forty seventh trip to the bathroom in three hours.
There have been random cramps and muscle pain. I have felt the sudden jolt of a pain in my shoulder and the sour thud of forgetting what I just said.
Things has tasted like bad Chinese food wrapped in an old bathrobe.
Water tastes like thick blah flavored bullion.
It’s been big fun.
I have felt the crunchy crash of the chemo.
In fact…
I’ve felt like a crash test dummy.
Okay, i realize that I’m a disproportionate crash test dummy, a chunky one with very short legs. But, still I feel like I’ve been knocked around.
It’s been a little bumpy.
But, in the crash, here is what holds me in place…
Love is a giant airbag.
It catches me.
It comforts me.
It breaks my fall.
If things are crashing down, the single greatest thing I can do is to simply surrender to the raw momentum of pure love.
Love breaks the fall.
I have found during this crunchy seasons, that love gets inflated.
It catches me in it’s grip.
We have seen that this week…
During this whole adventure, I have felt the love of God like never before.
I feel like my relationship with Him has been inflated.
I know Him better than I ever have.
I’ve leaned into the airbag.
I’ve also felt the life giving pushback of the love of others.
We have received countless prayers, encouraging words, sweet cards, and thoughtful gifts.
They have reanimated this crash test dummy!
I’ve felt the love.
It’s pushed against my soul letting me know I am protected.
Love has crashed down and I will never be the same.

Live THICK!

Posted: October 2, 2018 in Postcards from Cancerland.

I look at my hands.

They are crinkly and dry.

They look like colorless stained glass…how sad is stained glass without color?

My palms closely resemble a detailed road map of southeastern Iowa. 

Right now, my hands aren’t pretty. 

Because of the medicine that I’m taking, weird stuff is happening to my skin, this week it is wrinkly and flaky. 

It looks thin. 

Actually, it looks dangerously thin, I can see blue veins. 

I can see through the thin. 

My skin is like crunchy tissue paper that looks like it could easily tear.

This is all new to me. 

I’ve never really been into skin care.

I’ve never exfoliated. 

I’ve never had a skincare regimen.

But, I really don’t like living with thin skin. 

Thin skin hurts!! 

It’s not the first time I’ve lived thin.

I’ve often lived with a thin skin. 

I’ve been easily offended by what people say (or what I think they said).

I’ve been overly sensitive to opinion and have easily given into criticism. 

I’ve changed vision and agenda because it has “bothered” others. 

I’ve believed imaginary insults and that has  clouded my perception of myself and others.

I’ve also offended others. I’ve said stupid stuff, I’ve been a jerk.

It has made my life thin in the past.

I’m ready to live thick. 

In our upside down world, offense has become a virtue.

We take one of two stands, both can cause a thin life.

First, we live afraid that we MIGHT offend. 

So we become cautious and politically correct. 

We dilute and distort so everyone likes us.

We are afraid to be ourselves because we might hurt someone’s feelings. 

We desperately try to say all the right things and make everybody happy.

That makes for a very thin existence. 

Or, second, we TRY to offend, and we applaud people who aren’t afraid to offend others with their truth. We cheer them on for “telling it like it is” when in reality, they are just being jerks. 

We turn our opinions into weapons. 

We stretch common decency until it breaks.

And we live thin. 

Thin living creates a life that can easily tear. 

Live thick!

But, how?

Treat offense like a hot potato! 

Drop it!!

Refuse to hold it or hurl it!

Offense can’t hurt you if you don’t hold it. 

Offense can’t hurt others if you don’t throw it in their face.

Offense can’t make your skin flaky and thin if you don’t come into contact with it.

Don’t live thin.

Realize that the truth about who you are is thick.

You are loved, you are enough, you matter.

Don’t believe the thin lies. 

Realize that kindness is thick. 

Build kindness muscles.

That only happens by exercising kindness.

Wrap yourself in kindness and throw it around like confetti.

Live THICK!!

and if you see me, don’t be frightened by my flaky, dry skin.

It’s temporary.

My skin will be thick again soon.

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The week after chemo treatment can get a little crazy and crunchy. 

I don’t totally know what to expect.

It can be a combo platter of jittery and exhaustion. Weird stuff has happened to my skin and I walk like a toddler on Benadryl. 

My train of thought frequently gets derailed.

It’s all wild, but, nighttime is the wildest.

The chemo drugs seem to be nocturnal and they like to party all night long.

After a rough night before, I really…REALLY wanted a good night’s sleep last night.

I handed in my ticket and I was hoping for a nice, relaxing lazy river of dreams.

Instead, I got another night on the Tilt-A-Whirl.

Do you remember the Tilt-A-Whirl at the Fair or amusement park? There was a rotating platform that raised and lowered itself and hurled spinning cars around. It was a herky jerky wrestling match between centrifugal force and gravitational pull.

It was calculated chaos!!

You are basically spinning in 13 different directions while trying to keep from throwing up your corndog. 

That’s bedtime for me right now!

I’ve heard a windstorm in my head and I’ve seen fireworks on the back of my eyelids every time I shut my eyes. I got to admit that the fireworks are kinda cool…I’ve seen flashes of purple and green and once last night I swear I saw a neon orange Elvis head. 

I know it’s only temporary, it should settle down the next few days as the poison does its job.

So I grab the guardrail and hang onto the Tilt-A-Whirl.

But, here’s the crazy thing about the Tilt-A-Whirl…

As a kid, it was always one of my favorites. 

I loved trading my ticket for a chance to spin. 

It made me want to throw up, but it also made me feel fully alive.

There was something about the wildness and unpredictability that awakened my senses.

My current Tilt-A-Whirl is doing the same thing…

I’m still here!

So are you!

Sometimes life makes you want to throw your hands in the air and laugh.

Sometimes life jerks you around.

Sometimes life makes you want to throw up.

Pleasure, pursuit, and pain are all proof of life. 

I don’t know what you are going through right now.

Maybe you’re on your own personal Tilt-A-Whirl.

But the fact that you are reading this means…

YOU ARE STILL HERE!!

There is still hope.

There is still a chance to make a difference or to make things right.

There is still a chance to feel and forgive, to laugh and to love. 

There is still a chance for a miracle. 

It might get a little crazy and crunchy in the meantime. 

Grab the guardrail and hold on! 

Truth nugget.

Posted: September 30, 2018 in Postcards from Cancerland.

We encounter things that would snuff out our light,

Don’t go dark, stand up straight and bring joy to the fight.

Live out loud, be yourself, and create without fear,
Never lose sight of the fact that you are needed here.

‘Twas the night after chemo when all thro’ my brain

Not a cell was resting, not one single membrane;

My pillow was propped by my bald noggin with flair.

Hoping that sweet slumber would soon mercifully get there. 

But, sleep only came in nine minute spurts,

Interrupted by strange impulses and hurts. 

My mind was racing at 164 miles per hour, 

My mouth was dried up and really tasted sour. 

I can only remember one short crazy dream,

I was trying to snooze in a hotel it would seem. 

When I had nightmarish visions of small children with bowling balls,

They were loudly hurling them outside my room down long hotel halls. 

All night there in my head there was such a clatter,

Playing unwelcome games with my gray matter.

AND when my brain did take a quick break,

My bowels tapped in, NOT for goodness sake! 

I’m happy to say that I made it through the long sweaty night,

Eventually the swampy darkness was overcome by light. 

I’m pretty worn out, I’ve experienced an energy zap,

I’m REALLY looking forward to taking a power nap. 

Round Four Recap.

Posted: September 28, 2018 in Postcards from Cancerland.
FBA4475E-3DFF-45F6-A1E9-01E814A13B6BChemo treatment week four is history.
Here’s some of the highlight reel…
It’s an incredibly liberating thing to get unattached from the life giving poison pumping machine after wearing it for roughly one hundred and twenty six hours straight.
I’ve become better at navigating life with the pump, but it’s still scary when the alarm goes off and it’s like I have a time bomb attached to my chest.
After tweaking my meds a bit, my hands are hurting less, HALLELUJAH!!!
BTW, Hallelujah is becoming one of my favorite words! It’s a word that you can’t limit or pin down. It’s a seven layer dip of thankfulness. It can mean glory, or huzzah, or giddy up.
I got to take a surprise cat scan this week because of a curious cough that I’ve had for a few weeks. The Doctor wanted to find out if it was the disease, the cure, seasonal allergies, or because home builders are burning trees in our neighborhood so that they can build shiny new houses. (Evidently kids, progress smells like burning natural resources.)
It turns out I’ve had pneumonitis (inflammation of the lungs). So now I have a new drug!
Speaking of cat scans, I have a growing fear…
I’m always afraid that I’m going to fart in the cat scan tube.
That would not be pleasant!
After the cat scan, I did get to wear a pretty neon pink bandage for a few hours. It was a little confusing to wear it on top of my anchor tattoo.
Several people told me that the effects of the magic chemicals are cumulative.
I’m realizing what that means.
For me, one delightful way that is working out is that it feels like we wrapped one flannel blanket around my brain the first round and we’ve added a new blanket each round.
I’m a little foggy and fuzzy.
For about a week after treatment, I walk around with my mind in a camouflage haze.
I actually have scraggly peach fuzz on my chin!! It’s like I’m seventeen again!!
This could be the beginning of a Chullet comeback!
I have the blood cell booster attached to my arm again for twenty seven hours. It flashes a green signal and it looks downright robotic. I’m hoping it makes people think I’m an alien.
I’ve learned that fashion fades in foxholes.
When you are in a room with people who are fighting for their lives, nobody cares about how much your shoes cost.
They wonder “are your shoes comfortable? Are they easy to get on and off?”
(BTW, Vans slip ons are truly amazing)
Flexibility pays off!
We arrived at the Oncology clinic this morning to find out that they had no power, which is fairly important.
So we had to go to another office.
The other office is near an amazing donut shop…SCORE.
Finally…
I’m learning more and more to lean into love and listen to the voice that tells me that I’m not alone.
I’m learning just how rich, relentless, and ridiculous my Father’s love is for me.
And it’s good, so very good.

Something Beautiful.

Posted: September 27, 2018 in Postcards from Cancerland.
I witnessed something beautiful today.
Diana and I were walking into the Oncology clinic.
There was an older lady walking in front of us. She was small and very frail. She was in pain and she was alone.
We wanted to hug and help her.
Before we could, one of the nurses swept in beside her to help.
He is a big, burly dude, picture a Viking with kind eyes.
He is about two feet taller than her, but he tenderly reached down and grabbed her belt and held her up.
He treated her with great dignity.
He slowly helped her walk, reassuring and encouraging with soft words the whole way.
As he helped her into the vinyl infusion chair, she was moaning and confused.
He continued to talk to her and I watched her pain melt away.
They started joking.
I watched his compassion change her countenance.
Suddenly, I was struck with two thoughts…
Kindness is a revolutionary act in a world where hate and hurt are hurled around like grenades.
And, it was such a lovely picture of what God does for us on our small, frail, painful days.
He reaches down and holds us up.
Even on the days when we feel all alone, God continually has ahold of our belt. He helps us walk as He sings songs of tender encouragement.
His compassion changes our countenance.
“Don’t be afraid, for I am with you.
Don’t be discouraged, for I am your God.
I will strengthen you and help you.
I will hold you up with my victorious right hand.”
Isaiah 41:10 NLT

Bundle of Joy.

Posted: September 27, 2018 in Postcards from Cancerland.

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We call newborn babies bundles of joy.

Even though sometimes they stink and they need to be changed.

Even though sometimes they cry.
Even though you aren’t going to get any sleep.
There is joy.
There is discovery.
There is pure potential that smells like baby powder.
The potential is born of the fact that every baby is born to be loved and to love in return.
What if we viewed each newborn DAY as a bundle of joy waiting to be unwrapped?
Sometimes it’s a stinky day.
Sometimes we experience unexpected change.
Sometimes you might want to cry.
Sometimes new days are preceded by sleepless nights.
Joy doesn’t depend on any of those things.
Joy flows from the fact that you are loved, and you can love in return.
There is freshly powdered potential for great joy in every new day.
There is discovery.
What if we lived like we were expecting a bundle of joy…
every single day.