Archive for the ‘Uncategorized’ Category

4B4E6F23-5262-4796-AC3B-082BB3F38957

The chunky bald fighter pulls up his trunks and spits in the metal can, he mentally prepares to enter the ring again. He takes a deep breath and climbs through the ropes. He is careful because he has gotten tangled up in the ropes before. The fighter has discovered new things about himself.  For starters, he has realized that he is a fighter. He has spent much of his life avoiding confrontation. He likes happy, peaceful situations. But, he has realized that sometimes you have to put the gloves on and beat the hell out of the opponent. He listens to his trainer, he takes a deep swig of water and he moves to the center of the ring…

I take my seat in the infusion room.
It’s crazy that this has become familiar.
I recognize the sounds and smells.
I know what to do, where to sit, when to lift my shirt. I have my favorite chairs.
The IV machine clicks and occasionally beeps in a most familiar fashion. It pumps a fluid that looks like milk into my veins.
The room is full of people of all ages.
We all fight. Many of them have become familiar faces. We swap greetings and stories.
I kill time by reading a Star Wars novel.
It is a fun, familiar distraction.
Sometimes that is completely necessary.
The awesome staff is familiar to us now. We are on a first name basis.  A few weeks ago, we didn’t know them, now they are friends who join in the fight.
The building has become familiar to me.  There are three bathrooms. I’ve used them all about two hundred times. Even as I start this round, I have to go every eleven minutes. This requires getting out of the vinyl recliner, unplugging the rolling IV machine and awkwardly dragging it with me.
My movements remind me of my granddaughter. She has been learning to walk the last month. It started out herky jerky, it’s becoming more familiar to her.
She is getting good at it.
We can’t keep up.
I’m learning to walk again.
It’s different, but it’s becoming more familiar.
I’m more familiar with my opponent too.
He is a bully that has hurt far too many families.
He is very uncreative.
He throws the same old familiar punches again and again.
All he knows is hate and hurt.
He is predictable.
He’s going down.
My trainer is more about freedom than familiar.
The only thing predictable thing about Him is His nature…He will always be good, He will always be trustworthy.
Other than that, He is wildly creative.
He infuses me with fresh life.
My trainer makes me strong.
He gives me fresh comfort every day.
He gives me courage.
He gives me creativity.
I refuse to let familiarity numb the fight, I won’t let it lull me into a strange comfortability.
I can’t let my guard down just because I know my way around the ring a little more.
That could result in a sucker punch.
I’m back on the bag.
I’m sent home with the juice box.
The European man bag holding the pumps is once again my constant companion. It will send three separate chemo drugs into my body for the next twenty one hours. It’s like a really messed up sleepover.
I’m sitting here listening to it’s now familiar “kush…kush” noise.
And, just as my brain was getting a little less chemically crazed, I’m on the steroids again.
I’m not sure if that will ever really become familiar.
The second round is here.
I know it’s not here to stay.
So, I loudly shout my battlecry in a very undignified manner…
“HIS joy is my strength!!”
And I rear back my fist…
Cancer is like NASCAR. There’s one person in the seat, but there’s a whole team working to make that person better.
I’m not defined by what I do.

I’m not defined by my facial hair.
I am defined by my Maker.
I am defined by joy.
I’ve lost over twenty pounds the last couple of months, although, I do NOT recommend this diet plan!!
Hemoglobin is not a Batman villain.
There have been times in the last few weeks that a 7 year old could beat me in arm wrestling in about 13 seconds, normally it would have taken at least a minute.
70s rock is truly medicinal.
I’m amazed by science!! I’ve seen every one of my internal organs, I have a magic port in my chest that allows things to go in and come out….amazing!
I’m blown away by the generosity and kindness of friends, family, and complete strangers.
I love beans.
They, along with peanut butter, have become a trusted dietary go to.
One phone call can change your life.
My skin has been weird, tingly, clammy, AND super dry ALL AT THE SAME TIME! At one point my hands looked like stained glass without any color.
Steroids make me emotional, I cry when I watch fabric softener commercials!
Chemo farts are pretty horrible. I’ve even managed to offend my beagle who is no slouch in the flatulence department!!
There are so many good people fighting a hard fight that a couple of months ago I was clueless about.
We might not choose the plot, but we all get to decide how we will tell our story. I choose to tell a story of wonder, instead of woe.
My help comes from the Maker of the mountains, that is VERY cool.
Life is precious and sweet, and every new day is more beautiful than the one before.

A Boy and his Beard.

Posted: August 10, 2018 in Uncategorized

C28D81D1-0D91-41C5-8C79-E55A3480B386

 

Well friends, I have sad news to report.
During this crazy journey, the chullet has put up a very brave fight.
I really thought that my weird beard would go the distance.
But, alas, ‘twas not meant to be…
The chullet has dearly departed from my face.

The last several days, I’ve been left with handfuls of soggy chullet clumps in the shower. We have found lovely little chullet droppings around the house. (I tried to blame those on the dog, but that didn’t work.)
It went from luxurious to lifeless almost overnight.
Finally, I realized the inevitable…it was time to say farewell to my hairy little friend.

I will be honest, I wept as I cut off something that has become a huge part of my identity. It was tough shaving it and seeing a strange looking dude in the mirror.
As I cried, I realized that I was actually being given an incredible gift, the gift of empathy.
Now, I know how it feels. To the countless brave fighters who have gone before me and have had to shave part of their image and identity…
I get it.

It’s crazy how a crazy beard can grow on you.
My chin hasn’t been naked since 1989…Seriously!
My daughter has NEVER seen me without some form of beard. I’m hoping that she recognizes me.
One of my biggest childhood dreams was to grow a beard.
I would sit around and draw pictures of adult me with a big nasty beard.
To me, the beard was the epitome of free spirited manliness.
It was an exclamation point for your face!
I was a late bloomer, I couldn’t grow a beard until I was 20. But, since then, I’ve experimented with every possible expression of whisker. I’ve had a full beard, a full goatee, even the modified Dutch goatee.
Several years ago, I finally decided to just let it grow wild and define itself.
My facial fuzz, I believe by divine design, evolved into the “Chullet”.
The chin mullet.

It has served as both a built in scarf and a handy to go container.
It has been both a conversation starter and a polarizing Force.
It was part of me…literally!
I shampooed, conditioned, and slathered it with fragrant beard oil every day.
It was proof that just because something looks wild doesn’t mean that it’s not clean.

Over the years, the chullet has survived the beard-bashers, the haters who yanked it and said mean things.
It survived split ends and high winds.
It survived curious, grabby children and cranky old people with scissors.(seriously…it happened! Luckily, I could outrun them.)

But this week, the powerful chemo drugs that are attacking my cancer cells also attacked my chullet cells.
It’s okay.
I can live with that.
In fact, I can live BECAUSE of that.
I will gladly sacrifice my weird little beard for the chance to see my granddaughter graduate from high school.

But, here’s the deal…
the chullet was more than a scruffy explosion of facial fuzz.
It was an attitude.
It served as a simple statement that said…

“HEY! my face is a party!”

I still have that attitude.
Now I just get to express it in different ways.
Nothing says my face is a party like a big goofy smile.
The belly bully will NOT steal my ability to smile.
In fact, now I see smiling as an act of defiance.

AND SO I SMILE!

I have also been sent a lot of great beard solutions from friends…fake facial hair, face paint.
I’m going to have some fun with those, I’m thinking that right now, my big, wide open face cries out for a glittery unicorn.
that’s a party!

And as I continue to party with my face.
I wait…
because…
I know that IT is coming…

SON of CHULLET!!

D1ECA28B-4D18-48AB-B0D3-BB3165725FAD

Take a Sad Song…

Posted: August 6, 2018 in Uncategorized
Once upon a time a Knight and a Poet gave the world some sage advice.
He wrote (and sang): “Take a sad song and make it better.”
Paul McCartney wrote Hey Jude to comfort John Lennon’s son Julian during the divorce of his parents.
One of the greatest rock ballads ever was written to help a five year old boy get through a very tough time.
In the mixtape of our lives, we will listen to some sad music.
How do we take those sad songs and make them better?
Maybe we need to find a different rhythm.
Maybe we need to change keys, change a major or minor key. Change the way we play. Change our perspective.
Maybe we need to change a few of the lyrics…Change nope into hope. Change scheme into dream. Change busted into trusted.
And for heavens sake, we shouldn’t sing a solo!
Life is meant to be a sing-along!
Find someone who will sing with you. (Even if it’s your dog!!)
Then don’t hold back!
Sing LOUD!!
Do all the hand gestures.
Invite some other voices.
Take a sad song and make it better.
C’MON!! Sing it with me…
Nah nah nah nah nah nah nah nah nah

Last night I encountered the MOTHER OF ALL NIGHT-SWEATS! (I used all CAPS to make it seem really dramatic, kind of like a campy old horror movie.)

It’s a wonderful thing to wake up wet and clammy.
It’s been happening quite a bit lately.
My shirt was soaked this morning.
It’s a little embarrassing, but true.
Night-sweats sounds like an old Bob Seger song.
I lay in bed thinking about perspiration.
I couldn’t help it.
sweat…
I come from a long line of sweaters, Dad was a sweater, Mom was a windbreaker.
I’ve sweat a lot in my life.
If there was a frequent sweater card, I would be carrying it!
It doesn’t take much to make me glisten.
I’ve sweat from hard work.
I’ve also sweat from doing nothing at all.
I’ve sweat from standing outside in the sun, being in a cramped space, or eating a spicy burrito.
I’ve had butt sweat on a swampy summer day.
I’ve had the Meat-sweats after a night at a Brazilian steak house with some good friends.
I have occasionally sweat the small stuff.
I have also sweat about some big stuff.
Sweating is embarrassing.
We work hard to never let people see us sweat. We fret over sweat marks, we worry about our soggy armpits showing through our shirt. (interesting random perspiration fact: horses have armpits and sweat like we do, yet they don’t seem embarrassed in the least!)
Sweat stinks.
No really, it literally stinks!
It causes some noxious odors to invade our space.
It can make our pits smell like onions and our scalps smell like old goat cheese.
Not cool!
But, sweat happens.
Last night I encountered the MOTHER OF ALL NIGHT-SWEATS!
There’s an invisible battle going on inside me.
I’m left singing “hello night-sweats, my old friend.”
Why sweat?!
Maybe they’re just leaving my pillow moist.
(Moist is a word that annoys a lot of people)
But maybe the sweat is purging toxic things out of me…
Things that I can’t see.
I’ve been fighting fever and infection this weekend.
Maybe the sweat is doing something good that I can’t see.
If that’s true, I’m okay with the stink.
There have been times when I’ve had to purge my life of unhealthy habits, attitudes, thinking. Things that were toxic and stinky and embarrassing. But, things that were necessary to sweat out of my life.
Sweat happens.
Sometimes that’s good.

70ECBAA1-D33F-4E94-B816-02729A32A517.jpeg

I must say that our granddaughter, the Moonpie, is, suddenly, pretty much an expert on HIGH FIVES.
She is really good at them.
Every time I see her, she will throw her pudgy little hand up and slap my hand with serious enthusiasm!
Her HIGH FIVES are medicine for my mind, body, and spirit.
They are like happy little joy bombs!
I love HIGH FIVES.
I think that one well crafted HIGH FIVE can change your day.
A HIGH FIVE says “I see you!”
It’s not a good feeling when you go in for a HIGH FIVE and somebody leaves you hanging.
That says “I don’t see you…”
not cool.
But, a properly given and received HIGH FIVE is a beautiful thing.
It’s magic.
Along with a greeting, HIGH FIVES are also celebratory contact.
It’s the most basic form of party.
It cost nothing.
It’s not a terribly complicated skill. I have limited motor skills, and I’ve been able to give HIGH FIVES for most of my life.
We have had some celebration this week.
There has been cause for HIGH FIVES.
We have gotten some good reports! The Doctor is pleased with what he has seen so far.
HIGH FIVE!
At one point, Diana and me HIGH FIVED each other in a Lab because part of a urine test that came back good.
We wanted to HIGH FIVE the nurse, but he was wearing rubber gloves and that made things awkward.
Ain’t no party like a pee party!
We have also had or witnessed some challenges this week.
There have  been times when instead of HIGH FIVES, we have stretched our hand towards ON HIGH.
That says “do you see me?” or “do you see my friend?”
We’ve had a few challenges this week.
Some new pain, and infection, and deficiency.
So, we lift our hand…
ON HIGH.
We also have friends, new and old, and family who have faced and fought some stuff.
So, we lift our hand…
 ON HIGH.
Maybe we need a combo platter of the two? Maybe, as we lift our hand ON HIGH, we can also be engaged in the art of the HIGH FIVE with our neighbor.
I think that says: “I see you, and I stand with you.”
Maybe…
we should start the celebration before we even know the reason to party.
I like that!
HIGH FIVES are free, and unlimited, and sometimes they are medicine.
Let’s give them out like crazy!
Let’s give them out, without any discretion, to friends, strangers, enemies, and most of all to children.
One of my favorite Kid President Quotes says: “Give people HIGH FIVES just for getting out of bed…being a person is hard sometimes.”
I see you!
I’m coming in…
don’t leave me hanging…
HIGH FIVE!!
(with well seasoned apologies to Dr. Seuss!)

People told me that this would happen,

that my tastebuds would encounter a fright.
But I thought, I’m a chunky little dude,
I’ve always had a very healthy appetite.
I like food, I always have. It’s really no secret.
But, MAN! chemo-tongue is really, truly a thing,
that is  right now, keeping me from enjoying
my delicious cheeseburger with an onion ring.
OH!
THE TASTES YOU’LL TASTE!
Your food will taste like metal.
they told me, and sadly, that is true.
But it’s more than that! It’s biting into
an ugly unpleasantness I never knew.
Lunch meat tastes like a old Chevrolet bumper.
And fresh fruit tastes like the license plate,
Not that a rusty Chevy license plate is
actually something that I’ve ever ate.
Water tastes weird, coffee like sludge.
And grilled chicken? Don’t get me started!
It tastes like the pungent smell of when
a 47 pound geriatric goat has farted!
Eggs taste like nothing, it’s just not right.
And brother! It seems like such a crime,
when my dearly beloved tacos
taste like crunchy metallic slime.
You can salt and season
But, no matter what you do,
The flavor on your plastic spoon
will cause you to say EWWWWW!
I should eat something I’ve never tried.
Maybe, I should try tofu or kale.
Then if it’s different, I wouldn’t know,
It might just taste kind of stale.
I hunger for the day
When my senses are back in sync,
And I can devour scrambled eggs,
and a well done sausage link.
OH!
THE TASTES YOU’LL TASTE!
“It looks like I’m going to have to let go of what I expected and enter a mystery.” – Eugene Peterson
There seems to come a time, when you have things figured out.
You have your ducks in a row.
You have your 5 year plan.
You know what to expect out of life.
You know who you are.
Then something happens to the best laid plans, they get turned upside down.
The expected crashes to the ground and bursts like a bright red water balloon.
You find yourself in a most mysterious place.
We like easily solved mysteries.
We prefer stories that wrap up in 24 minutes when a group of meddling kids and their dog reveal that the zombie swamp monster is actually Old Man McGafferty in a mask. Then they ride off into the sunset in the Mystery Machine accompanied by a suspicious cloud of smoke.
Roll the credits.
Play the theme song.
Real mystery doesn’t work that way.
It seldom seems to be easy or controllable.
THAT is what makes it mystery.
It is foggy.
You have to step into it to start to see.
Things happen in the mystery that can’t happen anywhere else.
We are changed.
Mystery turns perspective right side up.
When we enter a mystery it might just redefine us.
We might have to leave behind WHO we have been.

We will encounter seasons when WHOSE we are is so much more important than WHO we are.

Mystery opens the door to wonder.
But, first, often there is wilderness.
Wilderness looks different for all of us.
I’ve been alive long enough to realize that wilderness is never a one time deal.
In the course of the journey we will encounter wilderness more than once.
But the goal of wilderness is always the same…
Let go of the expected and trust.
Wilderness isn’t a choice, but entering into the mystery is.
“Sometimes the smallest step in the right direction ends up being the biggest step of your life. Tip toe if you must, but take the step.”
Walk on through the fog, enter the mystery to see what wonders await…

C2228A87-15B9-4E0A-884B-A4062A0AA6C8

I have a confession to make…

I’m now sleeping with a nightlight.
It’s true.
I’m not ashamed.
Ever since this whole crazy journey started, we have a nightlight plugged in all the time.
I’m getting up a lot in the night.
I do the restless rhumba.
I go to the restroom 38 times.
I get up a lot.
So we have a nightlight.
It’s not that I’m not familiar with our bedroom.
I know my way around…
It’s just that SOMETIMES there are unexpected things in the dark.
You might step on a lego, you might trip over the box that you didn’t realize was there.
You might even step in a late night gift from the dog…EEEWWW!!
There are unexpected things there  in the night.
So, I sleep with a nightlight.
Because, I’m really not sure what’s out there.
And it seems that lately the really scary things come out at night…
the clammy-whammies…
the creeping-hurts…
the raging-brain-bombs.
Just like when I was eight years old, the monsters come out from under my bed.
Bullies love the dark.
It makes them seem bigger and scarier.
THAT is why we ALL need a nightlight.
Here’s the cool thing…
Even in the darkest night, the light shines through.
Light is always stronger than dark.
Light literally swallows up the darkness.
It illuminates the bullies and shows them for who they really are…
Temporary shadows in the night.
Sometimes life is a walk in the dark
Light helps me get a grip.
I sleep with a nightlight.